Wednesday, September 10, 2014

A Mito Family - Stuck Between Obamacare and a Hard Place


I first met Pattie through the Stand Up For Religious Freedom Rallies. She was an inspiration and tireless font of knowledge for us, as Owensboro citizens planned their event - all the way from North Carolina. Since then, I've gotten to know her as a fervent Catholic who advocates for LIFE and as a staunch believer in justice. The superhuman effort necessary to maintain some semblance of a 'normal' life for her family is daunting. A lesser woman might be found, in fetal position, wailing 'why me?!' Instead, Patti's two sons, who suffer from not one, but two, 'orphan' conditions play baseball, soccer, and gather with their many friends to enjoy life as teens. Her life can only be described as inspirational - even though, it makes me tired to just read about everything she manages to squeeze into the same 24 hour days so many of us squander.

In the video, 'A Mito Mother's Plight', we are made privy to some heartbreaking facts - both about what her family is facing, health-wise, but also the terrible scourge that implementation of Obamacare is on families like hers. Life-saving medication, vital to their survival, is being denied this family because of Obamacare. She makes perfectly clear that she isn't seeking pity, she just needs for the citizens of this once great nation to be aware and to "stand up and push back against a government that is overreaching".

We need to be aware, we need to be proactive. Pray, yes! But also stand up and do something!

+JMJ+

Please take the time to watch the video below. In an accompanying description we read...

by Nicole Revels - Journalist
This is the story of a North Carolina mother of three sons, two of whom have a rare bone marrow failure syndrome called Shwachman-Diamond syndrome combined with a secondary mitochondrial disease. Pattie says that she has witnessed her family's insurance coverage slip away as premiums, deductibles, and medication co-pays have drastically increased with the implementation of mandates contained within the Affordable Care Act. Pattie has now been notified that her sons' life-saving compounded medications will be dropped from coverage all together as of September 15, though her family's medications and treatments were covered with no denials for years prior to 2011. Pattie fears that her family may soon lose their employer-provided health insurance completely, forcing them onto Obamacare exchanges under which they would be denied access to their current specialists. Having read the Affordable Care Act legislation prior to its passage, Pattie says that it was evident that the mandates would generate exactly the detrimental impacts that she is now experiencing. She asserts that the ultimate goal of the legislators who adopted the Affordable Care Act was the extinction of private health insurance companies, giving rise to a single-payer system of substandard healthcare.
Read the full article, , "Obamacare Has Destroyed My Family" - A Mito Mother's Story,  here.  



http://youtu.be/9RAhCDzs-hY